Tuesday, October 30, 2007

New Treatment Plan

We spent most of today at CHOC, Kelly is worn out. We started with Oncology. We have decided that Kelly will start her next round of chemotherapy on November 12. She still has one more neurosurgery procedure next week. (I'll get to that below) She will do 2 weeks of IV chemo,then 2 weeks off. We will be driving up to CHOC 5 days a week for 2 weeks for this treatment, so she can do it outpatient. She will also continue her oral temodar she was taking before, but will have a stronger dose.

She also had her pentamidine IV treatment today. This prevents her from getting sick, but she feels lousy the day she gets it. We usually go right home afterwards so she can sleep. But today we had another appointment with neurosurgery.

We saw Dr. Muhonen first so he could make sure she was doing OK after her surgery. He wants to leave her stitches in one more week. Her incision looks good, but he is being careful because her skin has been radiated and it doesn't always heal as quickly. Her vision is doing much better after this surgery. He then explained to us that at the meeting about Kelly's treatment plan, they thought it would be a good idea for her to have gamma knife radiosurgery. His partner, Dr. Loudon, is trained to do this, so he came in next to talk to us.

He drew pictures and used her MRI scans to show us how he wanted to use the gamma knife (a form of very focused radiation, no real knife involved) to create a boundry around the area where her tumors have been. This will hopefully keep the remaining cancer cells from spreading to other parts of her brain. We felt better after his explanation. She will have it done at either Hoag Hospital in Newport Beach or Scripps Memorial Hospital in La Jolla. They will let me know when they get it scheduled for sometime next week.

Dr. Loudon could see Kelly was a little shaky after all of this, so he made her feel better by doing some really cool magic tricks for her. I think she feels pretty comfortable with him now! She also had to go downstairs and have some X-rays taken to get ready for next week. I have those now and will give them to Dr. Loudon when he does the Gamma Knife Procedure.

Here is a link that explains the gamma knife:
www.floridabraintumors.com/leksell.html

11 comments:

Anonymous said...

Be on the lookout for Thidwick, the kind-hearted moose. Scheduled arrival on Thursday by UPS. Compliments of the Mahwah evening book club, who are sending you gobs of good wishes for your next round of treatment. Also for Shannon, watch out for those coffee tables. They can be treacherous!

Aunt Tracy said...

Hi Kelly,
I can see why you were shaky after hearing all about gamma knife radiation - that was a lot to take in I bet, especially after all that you've already been through! Your mom was smart to put a link on your blog so we could read all about it - it sure sounds like the kind of treatment that's not going to let cancer have the upper hand!

It looks like you might be keeping the mail delivery people busy! We have something on its way to you too! It's sent with lots and lots of love - I hope you can feel it when you open it!
Love and hugs!!
Aunt Tracy, Uncle Tom, Emily & Jake

Aunt Denise said...

Dear Kelly,
All of this science and medicine would be soooo cool if it didn't involve you as the patient. I printed off the pictures of you and your sisters with Mia and they are now on our frig so we can think of you all and see you all everyday. Stay strong because it looks like treatment is getting tough. But I guess when cancer gets tough you have to get tougher.
Love to all
Aunt Denise

Kim said...

Kelly,
WOW! That's a lot to take in. You must be one tough gal! I'm sure your Mom is very proud of you. Stay strong and focused and wrap yourself in all the good wishes and love that everyone is sending you. Take care.

Kim (Your Aunt Tracy's friend)

Michelle Morris said...

Hey Kelly,

This is Michelle from AXP [donuts :D]

I've been thinking about you and the other donuts recently and when i found your sister on myspace [which was actually through my best friend's account] I was really excited because I miss you so much!

Anyway, I'll talk to you soon. My number's 584-4091 :)

<33 Michelle

Laura Jackson said...

Wow, the new plan sounds very high-tech and powerful! Stay strong.... you are an amazing girl Kelly! We are often keeping you all in our thoughts. Jealous of your recent vsistors, too. All our very best wishes, Laura and Tatiana Jackson (who enjoyed arts xpress camp this summer thanks to your Mom!!!)

Lori Tonick said...

Kelly,
Sounds like you have great doctors who are giving you the best and latest treatment. Keep up your great attitude as it will pull you through your treatments. We are all so proud of you for being so strong.
P.S. Happy Halloween!
Love,
The Tonicks

skrpndiva said...

Wow, lots to digest here but sounds very technical and like a great idea. Your doctors sure seem to know what to do and that is rather comforting!

So glad that you are feeling better.

Kathy, as usual, if YOU need anything, please let us know.

Jacquie

Julie said...

What a comfort it must be to have such amazing and caring doctors watching over you...along with everyone else! Your bright attitude is an inspiration. Keep it up. It can get you through some of the crummier times.
You are in our thoughts.
the Lischs

Shelby Preusse said...

Dear Kelly,
I'm so glad Ginny emailed us your blogsite, as we didn't know how to get your updates. You have been in our family's thoughts and daily prayers all summer and fall. How wonderful that you got meet your favorite choreographer! We are glad your surgery went well and you are recovering so fast. We will be praying for you next week when you have the gamma procedure done. You are so beautiful - love seeing your photos and your contagious smile!
God Bless you always and love from the Preusse Family
Rick, Shelby, Harrison, Carly, Carson and Christian (4 months).

Aunt Denise said...

Good morning Kelly and Family,
I hope all is well. Did you have any fun on Halloween? Your Grandfather believes in getting his favorite candy and hoping that not that many kids come. He was lucky this year there was an extra bag of Milky Ways so he's happy. How is Shannon's head? I bet she had a headache. Well I send kisses to everyone's booboos.
Love to everybody,
Aunt Denise