Sunday, June 29, 2008
Dance Saturday
Posted by Kathy at 8:05 PM 15 comments
Wednesday, June 25, 2008
Chemo Day Distractions
Posted by Kathy at 8:55 PM 14 comments
Wednesday, June 11, 2008
Special Request
Bailey is a friend of ours that we met at CHOC. He is also an oncology patient and has been on chemo for over two years. His family is finally taking a break to take a cross country road trip this summer. One of Bailey's biggest wishes is to meet Paula Dean, from the Food Network. He would really like to be on her show. So one of their stops will be Savannah, Georgia, where her show is taped. Take a look at this video his mom made that Bailey would like Paula to see.
His family has learned that you have to be 18 years old to be on the show. Bailey has been given a 10% chance of survival, so his family is anxious for him to meet her this summer. They are hoping that if the show hears from enough people, it may have an impact on them to consider Bailey. They would appreciate anyone who could forward this video to her, email her, or write a letter. I'm working on finding an address - I'll post one as soon as I can find it. If anyone has any tips for contacting the Paula Dean Show, let me know! Here is one website that has some information: http://www.pauladeen.com/tv If you would like to learn more about Bailey, he also has a website. www.carepages.com Then go to the carepage named SuperBay. You may have to sign in first, but it is easy. There is an About Me section that gives his background. His mom has a lot of pictures and videos on his carepage. You won't be dissapointed, he is quite entertaining.
Thanks for your support for Bailey.
Kelly and I spent the day at the infusion center for her chemo. They changed the order of the drugs they gave her, so she felt sick longer today. This is the way the research shows the drugs work best, but I'm not convinced it is best for Kelly. It seemed to be working the old way just fine, according to her MRIs. I'll talk to her tomorrow about how she feels about it. She has been snuggled up in her bed since dinner. She did manage to have a few bites to eat. These days really take a lot out of her. I know not to even try to talk to her tonight. She just has to rest quietly and she'll start talking tomorrow again when she gets some energy again.
Megan and Shannon have one more week of school. We are ready for summer! It is exciting to have fun plans for this summer, after the summer we had last year. Everything started happening as soon as school was over last year with Kelly. Megan and Shannon are also very busy getting ready for their dance show coming up. Megan is doing better and better with dance and her ankle is healing.
Just added: website for Paula's restaurant in Savannah (there is a place to leave a message under contact us) http://www.ladyandsons.com/
Also - click on comments (below) Henry just posted two addresses for her in his second comment. Thanks Henry.
Paula has been on QVC a lot, and here is an email address for the host she is always with, David Venable. It is a long shot, but if we contact everyone around her, maybe it will help!
d_venable@qvc.com
Posted by Kathy at 8:42 PM 22 comments
Wednesday, June 4, 2008
Good News!
Kelly had her MRI today and it went very well. We went to Dr. Muhonen's office right afterward and he was very pleased with the results. Her scans were all clear! I would post a picture, but it looks just like her last MRI. There was a very small spot of enhancement 8 weeks ago, and that isn't even there anymore. So it is a great night at our house. It is such a relief to have an MRI over and have good results.
Posted by Kathy at 4:13 PM 28 comments
Monday, June 2, 2008
Celebrating Courageous Kids
Yesterday we attending an event at Newport Dunes in Newport Beach for the CHOC oncology patients and their families. It was a beautiful day on the water and Kelly and Shannon had a lot of fun. (Megan had a confirmation retreat at our church.) It was Luau themed with bands, hula dancers, crafts and games for the kids. Since it was Hawaiian themed, naturally lunch was catered by Panda Express, a chinese restaurant. It was good though.
Posted by Kathy at 6:12 PM 13 comments